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Recent Blog Posts

SCIS

  • SCI Did Not Stop This Tough German
  • Update On Rodney Rogers
  • Another Day, Another SCI
  • Rodney Rogers, Paralyzed

Spinal Cord Injury News

  • Budget Cuts Reduce Disabled Transit
  • New Jersey State to Cut Spinal Cord Injury Research Funds
  • Recent Study on US Health Care System Performance
  • Good Article on Making Babies After SCI
  • "We have promising new treatments that would just die on the vine"

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SCI Did Not Stop This Tough German

Submitted by SCIS on Tue, 07/27/2010 - 19:29
Schaeuble When I first was paralyzed, I searched everywhere for people who had risen to the top of the profession despite severe disability.  I wanted to see doctors, lawyers, politicians, CEOs or scientists who were the best at what they did, despite spinal cord injury.  It was moderately disturbing to me when it was really difficult to find many examples.  With an unemployment rate of over 70% if you are paralyzed, the problem was that there aren't too many to choose from.  

Wolfgang SchaeubleWolfgang Schaeuble
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Budget Cuts Reduce Disabled Transit

Submitted by Spinal Cord Inj... on Mon, 07/26/2010 - 19:59
Budget cuts everywhere at the federal, state and municipal levels hurt everyone.  However, just like in nature, where predators seek out the weak, the young, or the elderly--the budget cuts go after the disabled, who are affected first, and most severely. 

EVLiving.com: Valley Transit Service Reductions Hit Disabled Hard

In Arizona, I don't expect the 75% unemployment rate for people with spinal cord injuries who can't drive will be decreasing any time soon. 

Going to work, getting an education, visiting friends and relatives and other activities could be severely cut for disabled valley residents when July transit services reductions go into effect.

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New Jersey State to Cut Spinal Cord Injury Research Funds

Submitted by Spinal Cord Inj... on Fri, 07/02/2010 - 21:00
New Jersey State to Cut Spinal Cord Injury Research Funds Just awesome...

"In 1999, the state of New Jersey passed a law which took $1 from each traffic ticket and put that towards the funding of spinal cord injury research. In 2003 and then 2005, the state legislature passed similar legislation to take $1 from traffic tickets to pay for brain injury and autism research. The laws states that the money cannot be used for any other purpose. The New Jersey Commission for Spinal Cord Research funds approximately $3.5 million of spinal cord injury research per year. When I first came to New Jersey in 1997, there was little spinal cord injury research being done in the state. Now, there are over a dozen laboratories doing spinal cord injury research.
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Recent Study on US Health Care System Performance

Submitted by Spinal Cord Inj... on Thu, 06/24/2010 - 21:00
US Health Care System Performance
Sometimes its easy to ignore how bad the US health care system really is.  Unfortunately for those with a SCI, it is a daily reality that cannot be ignored.  The worst part is how much we have to pay for the substandard care we do receive.  With disabled unemployment at all time highs and most disabled people living at/below the poverty line, it is easy to understand the disturbing rankings in the graphic from the study below--last place in both "Equity" and "Long, Healthy, Productive Lives". 

"Despite having the most costly health system in the world, the United States consistently underperforms on most dimensions of performance, relative to other countries."
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Good Article on Making Babies After SCI

Submitted by Spinal Cord Inj... on Sun, 06/20/2010 - 21:00
Good Article About Making Babies After SCI Pretty good article about a quadriplegic who just had his first child.  I've never read anything from PhillyBurbs.com before but this one has it all... online dating, low sperm counts, a nice title that will be"inspiring" for able-bodied people, and most importantly, a happy ending.  

"People with spinal cord injury-related paralysis can - and do - conceive children. But it can be a long, emotionally difficult and expensive process with no guarantees. Men, more so than women, also can find it harder to achieve biological parenthood."

PhillyBurbs.com:  'For everything I've lost, I've gained so much more':
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"We have promising new treatments that would just die on the vine"

Submitted by Spinal Cord Inj... on Fri, 05/14/2010 - 21:00
Die on The Vine

"The state's budget woes are being felt at the New York State Neural Stem Cell Institute, where scientists have been working to find ways to regenerate damaged spinal cords.


New York officials now want to use the funds that are collected from a surcharge on moving violation traffic fines and dedicated to research to instead help close the budget gap. Legislation establishing the Spinal Cord Injury Research Trust Fund provided that up to $8.5 million a year was to fund research into spinal cord injuries.

Sally Temple is scientific director at the stem cell institute, housed in the Cancer Research Center at the University at Albany's East Campus. Grants from the trust fund cover about 20 to 30 percent of the institute's activities.

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New York Legislature Cuts Self-Funding Spinal Cord Injury Program

Submitted by Spinal Cord Inj... on Thu, 03/11/2010 - 22:00
New York Legislature Cuts Spinal Cord Injury Funding Very sad... Probably just the beginning of these types of headlines with the dire financial straits of the states around the country.  For a high quadriplegic barely hanging on to life, these headlines have to be devastating...

"In 1998, with the help of friends and influential people like Christopher Reeve, Richter got the state to create the Spinal Cord Injury Research Board, which distributes research grants to facilities all across the state. To fund it, the state placed a surcharge on fines for moving traffic violation.

"It’s a self-sustaining program,” Richter explained. “It was an idea I had to try to raise money, and most spinal cord injuries result from automobile and motorcycle accidents."

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Update On Rodney Rogers

Submitted by SCIS on Mon, 06/01/2009 - 20:46

Being a huge hoops fan, I was quite disturbed when I learned of Rodney Rodger's spinal cord injury back (http://www.scisucks.org/content/rodney-rodgers-paralyzed) in December. Chris Webber (Rodney's friend and former teammate) interviewed him and this was displayed at halftime of Game 6 of the Eastern Conference Finals over the weekend. This was Rodney's first public appearance since his injury. I can't describe how upsetting the details of Rodney's injury are to me... C3/C4. From everyone around him, it sounds like he was a tremendous person who was active in his community. It simply isn't fair. We know that, but what can we do about it? My thoughts are the same on Rodney's SCI as on any other--don't pray, rationalize or lament the tragedy.

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Another Day, Another SCI

Submitted by SCIS on Thu, 02/19/2009 - 01:00

A lot of people find this site via Google when they are searching for answers when spinal cord injury makes an unwelcome appearance in their lives.  I get emails from people that sometimes touch me deeply.  I thought this one was particularly powerful  and am sharing it with the permission of the wonderful woman who wrote it:

Hello,

First of all, I want to tell you how much I love this site. I agree, Spinal Cord Injuries Suck and most people have no clue. I have read most of your posts and have passed on some of the information to my daughter, who is a recent C5 Incomplete Quad.(Just typing that out makes me cry) Feels the same way you do about the bowel and bladder program. Recently, told her boyfriend, who started showing-up less and less, to move on. Didn't want someone around, who felt "obligated" to hang with her. Wanted to focus on her recovery and didn't feel like she could be a very good girlfriend to him right now.

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Rodney Rogers, Paralyzed

Submitted by SCIS on Mon, 12/08/2008 - 20:24
If the morbid state of the economy or the freezing temps and snow in Chicago aren't enough to put me in a bad mood, I learned today that Rodney Rogers, a former Wake Forest star and NBA journeyman sustained a spinal cord injury while riding an ATV. The news reports are vague at the moment as to how long ago the injury occured, but it sounds like he is "paralyzed from the shoulders down". That's layman speak for a cervical injury; Rodney Rogers is most likely a quadriplegic.

http://sports.espn.go.com/nba/news/story?id=3744237

It sounds like, in addition to being a guy who could created... "his legend on the football fields and basketball courts of Durham as a teenager, he was known as 'the Durham Bull.'", he also was active in his community despite the wealth he accumulated as a professional athlete.

http://www.newsobserver.com/news/story/1319971.html
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